Ever since this started I feel like I am always waiting; waiting
on a test, waiting on a doctor, waiting for results from test, or waiting to
see the next doctor. I still have
another week before I go to my first radiation treatment. It’s hard not to
worry about it. It’s all of the unknowns that start getting to you. I have
tried to keep myself occupied. It helps keep your mind off things.
It’s been nice that my work has been working with me. I have
been put on “light duty”, and we don’t really have any light duty where I work.
Most of the time they just send you home, but my manager has been working with me
to be able to stay and find things to do. I really didn’t want to go home. I
know all I would do is spend time thinking about everything going on. They are also going to get me on what is
called “intermittent short term disability”. That way I will be able to leave
every day to get my treatments and still get paid like I’m at work.
I’m not really sure about the medication the doctor has me
on. I think it causing me to have some crazy dreams at night. The other night I
was being chased by cows as I ran down a dirt road and when Christy got there
she had hairy legs but the hair wasn’t all over her legs it was just on her
shins. As for helping with the pain, I don’t feel like it’s doing much. It
dulls the pain some but not much. I still end up not sleeping all night. I
ended up on the living room floor the other night. It was the only place I could
find that didn’t make my back hurt.
So I know this post really doesn’t have much information but
it’s what’s been going on. I also want everyone to know you are welcome to
comment and leave any questions you have.
Yeah I remember the waiting sucks. You probably have to wait a long time in the hospital too. St. Jude was great but it's still a hospital and the wait times were ridiculous. Like hours of waiting. Best to bring something to read or play games on your phone. Helps to have an iPhone for that.
ReplyDeleteI know what you mean about waiting. Basically that was what the neurologist told us what we had to do when I got discharged from the hospital last June. Been living a "sit around and wait" game almost a year now... It's frustrating.
ReplyDeleteYou should probably tell your doc to change your meds. I was on some stuff for my tremors last summer and it made me crazy and depressed. I was crying almost every other night... They put me on another medicine and John appreciates it for sure.
Thanks for posting updates! We think of you often and are keeping you in our prayers.
ReplyDelete