Just as the title says, today
didn’t go quite as planned. When I got up this morning, I thought I would be
going alone to my first radiation treatment. I was really glad when my old
climbing partner, Alan, text me to find out what time I had to be at my
appointment. It was nice to know that I didn’t have to be there by myself. When
I got to my appointment, Christy had taken off work to surprise me by being
there. I really have some great friends and a great wife.
When I was called in to the
treatment room, I was taken into a large room with an automatic steel door. The
walls were VERY thick. The machine takes up about half of the room and there is
a table to lie on. The first thing the technicians had me do was take off my
shirt and lie on the table so they could position me on the table the right
way. After that, they left the room to do an x-ray. When they came back, they
did some marking on my back then went out for another x-ray. After this, the
nurses had to stop the treatment because they didn’t feel comfortable with my
position on the table. The key to doing radiation therapy is that you have to
be in the exact position every treatment session. With the close proximity of
the tumor to my spine, the technicians want to make sure the high-doses of radiation
don’t interfere with my spine. They didn’t feel that was possible with the way
the CT people did the “mapping” for my treatment plan. With my doctor’s
consent, they had me go back to the CT to get re-mapped.
So, I had to start the planning
process all over again. We started out by doing a mold of the side of my head
lying on the table so that my head will be in the same place every time. This thing
looks like a small pillow that stinks really badly! They lay your head on it, and
then it forms and hardens around your head. It even left an imprint of my ear
in it. Then they gave me this thing that looks kind of like a bean bag. It’s a
clear bag filled with white Styrofoam beads. I laid down on it then the
technicians sucked all the air out of it. As they did this, the bag molded against
my body and arms. Each day I’ll lay in this mold to make sure I’m in the same
position during every treatment. All of this took almost 2 hours. They did the
mold thing 4 times before it was right. By the time I got out of there, I was
sore, and my back and arms were hurting.
Now we’re back to the waiting game.
The doctor will have to look everything over to make a new treatment plan. They
will call me with my new “first” appointment when everything is ready. I will
let you all know more when I know something.
This is not the news we wanted to hear. So sorry this has happened. I can't even imagine what your anxiety level must be. Hang in there. Love you.
ReplyDeleteDon't know why this made me anonymous, but the above comment was made by your Subtle Darlene.
ReplyDeleteAunt Darlene
ReplyDeleteIn His time and His way...things may seem impossible, but through Him ALL things are possible!
ReplyDeleteTake encouragement that they want to get things EXACTLY right...that is a good thing. We can do all things through Christ who will give us strength. HANG IN THERE!
ReplyDeleteI can't imagine how frustrating that must have been. You're lucky to have a such a great support system to get you through this.
ReplyDeleteman sucks that they didn't get it right the first time. Second time is the charm though! Yeah St. Jude had a big door in their radiation room. It was like being in a vault at a bank! I remember the head mold too but I don’t think mine smelled bad (then again I didn’t sniff it). I do remember it being comfortable to put my head in. Next time ask them if they can play music in the room. I asked and they wanted to know what music I liked (I said rock of course) and they ended up playing Miley Cyrus “Party in the U.S.A.” : P
ReplyDeletei just read your comment on my blog- and finally got around to reading your blog... i can totally relate- i went through radiation treatments everyday for five weeks back in March. It was tough but a lot more bearable than chemotherapy and less painful than surgery. hang in there. do reach out to me whenever you need to.
ReplyDeletetough times dont last- tough people do. always remember that :)